Thanks for all the nice posts. It really helps me along and helps keep me motivated!! Keep em coming :)
I emailed my Naturopath Doctor (he's awesome) and filled him in on my status and desire to try this IgG blood test and he's arranged for me to go in tomorrow for it so that's great that I don't have to wait long.
I'm getting a lot of people inquiring what exactly I eat and what I've done over the past year. It's a lot of posts to read so when I have a few minutes (no 2 yr. old hanging off me!) I am going to post my year in review - some ups, downs, struggles and victories!
Stay tuned!
Tuesday, July 12, 2011
Saturday, July 9, 2011
Appt. & Update
I had my appointment with my rheumatologist. He came in smiling and opened up with "Wow, I haven't seen you in a year and you look great." I proceeded to tell him that I was great and very pleased with my RA for the most part. I had decided not to go into all of the detail of what I have done, I just told him I made some nutrition changes and food eliminations and have been managing very well with no medications.
Now, to give some background- these last few months I've been about 50/50 flare up to normal. I have had a harder time keeping my RA under control with the added stress in my life and a struggle to stick to a very strict food plan. I have realized that for me, I have to be 100% on with my food in order to feel good. If I stray, even just a little bit, I flare very easily. I know I can do it, I just need to go back to the drawing board to know exactly what is and isn't allowed.
My doc did a joint evaluation and told me I have 15 effused joints. Last July I had 16. He told me that even though I am not feeling as much pain as I used to, that while there is inflammation, there is damage occuring. He's sending me for hand and feet x rays, blood work and will see me again in 4 mths. He also sent me home with info on a drug called Simponi. I don't intend on trying it.
So, what to do.... well, as mentioned- I have no intentions of going back to any big bad drugs (with the exception of the odd tylenol or naproxyn if I'm really bad) My plan is:
- go see my Naturopathic Dr. and get a blood test (IgG test) to help identify major & obvious food sensitivities
- continue to eat only clean and whole foods (ie. no processed foods, packaged foods, chemicals, etc)
- continue to take my probiotics, good quality vitamins & supplements
- go back to my earlier days of being on my elimination diet and not guessing that a particular food must be ok (even if healthy- still may be a problem) * I have read so much lately on how healthy coconut is (milk and oil) and I went ahead and added it without properly testing it.
Anyone else out there experiencing this? What do you recommend- starting over? Detoxing and adding foods back in 1 at a time??
I'm coming up on a whole year of eating super clean ! I haven't fallen off the wagon and gone on a crazy binge on my fave foods (large cheese pizza, DQ Peanut butter cup blizzard, fresh warm bread to name a few) It's been hard but I'm still on this mission and I know I will get there but it will take lots of perseverance and time.
Any advice or thoughts are always welcomed fellow bloggers! Thanks.
Now, to give some background- these last few months I've been about 50/50 flare up to normal. I have had a harder time keeping my RA under control with the added stress in my life and a struggle to stick to a very strict food plan. I have realized that for me, I have to be 100% on with my food in order to feel good. If I stray, even just a little bit, I flare very easily. I know I can do it, I just need to go back to the drawing board to know exactly what is and isn't allowed.
My doc did a joint evaluation and told me I have 15 effused joints. Last July I had 16. He told me that even though I am not feeling as much pain as I used to, that while there is inflammation, there is damage occuring. He's sending me for hand and feet x rays, blood work and will see me again in 4 mths. He also sent me home with info on a drug called Simponi. I don't intend on trying it.
So, what to do.... well, as mentioned- I have no intentions of going back to any big bad drugs (with the exception of the odd tylenol or naproxyn if I'm really bad) My plan is:
- go see my Naturopathic Dr. and get a blood test (IgG test) to help identify major & obvious food sensitivities
- continue to eat only clean and whole foods (ie. no processed foods, packaged foods, chemicals, etc)
- continue to take my probiotics, good quality vitamins & supplements
- go back to my earlier days of being on my elimination diet and not guessing that a particular food must be ok (even if healthy- still may be a problem) * I have read so much lately on how healthy coconut is (milk and oil) and I went ahead and added it without properly testing it.
Anyone else out there experiencing this? What do you recommend- starting over? Detoxing and adding foods back in 1 at a time??
I'm coming up on a whole year of eating super clean ! I haven't fallen off the wagon and gone on a crazy binge on my fave foods (large cheese pizza, DQ Peanut butter cup blizzard, fresh warm bread to name a few) It's been hard but I'm still on this mission and I know I will get there but it will take lots of perseverance and time.
Any advice or thoughts are always welcomed fellow bloggers! Thanks.
Tuesday, July 5, 2011
Motivated & Coconut milk
Hi All,
I'm doing well, have my eating under strict control! I changed a few things since my last post- one being removing all grains totally (no more rice crackers or rice cakes) and no more cheese at all (my beloved goat feta). Oh and I also stopped the V8. I have added fresh vegetable juice made by either my juicer or booster juice. It contains only beets, carrots, apple and ginger. It's pretty tasty. Oh and I have discovered coconut milk. I blend it in my magic bullet until it gets whipped like whipped cream and pour it over berries. It's so yummy and seems to be a popular treat amongst health food bloggers so I thought I would give it a shot to keep things interesting. It's very natural and I don't add any sugar or anything to it. It tastes amazing!!!
I got a call from my Rheumatologist to remind me of my appt this Thursday. I knew it was coming but didn't know so soon... so that is driving me to get these hands and feet in top notch shape so I can show them off! I'm anxious to see what he will say when I explain that I am still not taking any medications.... My only worry is these large bumps on the back of my heels. They are painful and don't seem to go away even when my feet and hands are well under control.
Wish me luck and I'll follow up later this week after my appt!
I'm doing well, have my eating under strict control! I changed a few things since my last post- one being removing all grains totally (no more rice crackers or rice cakes) and no more cheese at all (my beloved goat feta). Oh and I also stopped the V8. I have added fresh vegetable juice made by either my juicer or booster juice. It contains only beets, carrots, apple and ginger. It's pretty tasty. Oh and I have discovered coconut milk. I blend it in my magic bullet until it gets whipped like whipped cream and pour it over berries. It's so yummy and seems to be a popular treat amongst health food bloggers so I thought I would give it a shot to keep things interesting. It's very natural and I don't add any sugar or anything to it. It tastes amazing!!!
I got a call from my Rheumatologist to remind me of my appt this Thursday. I knew it was coming but didn't know so soon... so that is driving me to get these hands and feet in top notch shape so I can show them off! I'm anxious to see what he will say when I explain that I am still not taking any medications.... My only worry is these large bumps on the back of my heels. They are painful and don't seem to go away even when my feet and hands are well under control.
Wish me luck and I'll follow up later this week after my appt!
Tuesday, June 28, 2011
2 days down
I decided that I would write down all my food here to keep me honest. The time I did my absolute best was when I was doing that.. so the blog may get a little boring with lists of food but I think it will help.
Over the past 2-3 days I've had:
Breakfasts: V8, raspberries, hard boiled eggs
Lunches: Walnuts, rasisins, goat cheese, spinach
Dinners: steak, brocolli, spinach salad
Snacks: Nuts, apples
Drinks: Coffee, unsweetened choc. almond milk and tons of water!
** No more cheese sneaks! No more rice crackers (I was eating wat too much of them) No more hummus for a while and definitely no more jujubes and arrowroots! Ouch.
The dinner plan for tonight is bbq chicken breast and more steamed brocolli.
I can feel my flare lessening.... a few more days and I'll be back to my happy high energy self.
Over the past 2-3 days I've had:
Breakfasts: V8, raspberries, hard boiled eggs
Lunches: Walnuts, rasisins, goat cheese, spinach
Dinners: steak, brocolli, spinach salad
Snacks: Nuts, apples
Drinks: Coffee, unsweetened choc. almond milk and tons of water!
** No more cheese sneaks! No more rice crackers (I was eating wat too much of them) No more hummus for a while and definitely no more jujubes and arrowroots! Ouch.
The dinner plan for tonight is bbq chicken breast and more steamed brocolli.
I can feel my flare lessening.... a few more days and I'll be back to my happy high energy self.
Sunday, June 26, 2011
Another new beginning
I've turned into a "once a month blogger." Perhaps that's why I have gotten myself off track :( Don't get me wrong, I am still very strict for the *most* part. But as we know, that's not good enough when you are managing a chronic disease with nutrition and choosing that instead of heavy medications. You need to be 100% on or you won't feel 100%. At least that's what I've found. I went close to 8 mths with almost no cheats!
My family has been dealing with some major stress since my mom was diagnosed with Lung cancer. She is very sick right now and it's incredible hard on all of us. I won't get into detail, but I'm sure that the worry, stress and sadness surrounding her is a large part why I am flared up.
I'm also flared up because:
- at the hospital they have a great salad bar and I've been throwing some cheese into my salad along with a great tasting unknown salad dressing!!
- I've been buying my husband jujubes (his fave) and even though I swear to him that I didn't eat all the red ones.... I have indeed been eating the red ones (and the black ones!)
- I have continued my sneaky love affair with my son's arrowroots. While I don't think 1 or 2 really hurt- I never stop at 2. I have been known to put back a sleeve!
So, because today I woke up feeling especially sore and annoyed with my body. Because I logged into my blog and re-read so many of your enocuraging comments. Because I have to stay strong for my family right now. Because I know how good I felt for so many months and that I have full control of that... I am officially back to being the boss of my RA. I will start updating again regularly since I think that helps. I will only eat foods that are on my safe list and I will stick to it!! Take your creamy cheddar cubes and delicious red jujubes and shove it.
I'm back!!
ps- your comments really help me along! Please keep them coming and let me know of your successes!!!
My family has been dealing with some major stress since my mom was diagnosed with Lung cancer. She is very sick right now and it's incredible hard on all of us. I won't get into detail, but I'm sure that the worry, stress and sadness surrounding her is a large part why I am flared up.
I'm also flared up because:
- at the hospital they have a great salad bar and I've been throwing some cheese into my salad along with a great tasting unknown salad dressing!!
- I've been buying my husband jujubes (his fave) and even though I swear to him that I didn't eat all the red ones.... I have indeed been eating the red ones (and the black ones!)
- I have continued my sneaky love affair with my son's arrowroots. While I don't think 1 or 2 really hurt- I never stop at 2. I have been known to put back a sleeve!
So, because today I woke up feeling especially sore and annoyed with my body. Because I logged into my blog and re-read so many of your enocuraging comments. Because I have to stay strong for my family right now. Because I know how good I felt for so many months and that I have full control of that... I am officially back to being the boss of my RA. I will start updating again regularly since I think that helps. I will only eat foods that are on my safe list and I will stick to it!! Take your creamy cheddar cubes and delicious red jujubes and shove it.
I'm back!!
ps- your comments really help me along! Please keep them coming and let me know of your successes!!!
Wednesday, May 11, 2011
Clean eating = happy me!!
I'm very happy to report I'm feeling great. Had a few set backs over the last few months but one thing remains true and consistent, and that's when I clean up my diet, my arthritis improves drastically.
I'm still sticking to the same foods that have helped me over the last 9 months. Wow, 9 months since I started this "experiment" and I haven't had to go back on my long list of big bad drugs! (Humira injection, prednsisone, naproxyn, plaquenil) I'm so happy that I stuck through it and have reached this point.
How are you all doing out there? Are you finding relief through elimination diets?
I'm still sticking to the same foods that have helped me over the last 9 months. Wow, 9 months since I started this "experiment" and I haven't had to go back on my long list of big bad drugs! (Humira injection, prednsisone, naproxyn, plaquenil) I'm so happy that I stuck through it and have reached this point.
How are you all doing out there? Are you finding relief through elimination diets?
Monday, April 18, 2011
Ahhh...that's better
After a rollercoaster of feeling really bad, then ok, then good then really really terrible....I think I've finally got back to a feeling of good. I have narrowed down my flares to SUGAR..... My absolute favorite thing!!!
See, I don't mind not eating corn or banana's or wheat..... I get my cheese fix from Goat cheeses. But the sugar... there's just nothing like a good decadent piece of cheesecake or a hunk of velvety milk chocolate. And the wine... it seems that what they say is true, it's full of sugar. Perhaps I should learn to drink vodka soda's for a treat? I like my unsweetened chocolate milk with stevia but it just doesn't fill that "treat" void.
I went a solid 6 months being super strict and not cheating. For the most part, I felt terrific. Then all of a sudden I really seemed to get off track. Anyway- I feel remotivated and strong. In fact, I'm afraid all these flares have caused some permanent damage to my feet.
To all my fellow RA sufferers.... do you have large ugly balls of inflammation on your heels, well more above your heels? This is new for me and I'm trying to figure out if it's RA related or perhaps injury from all the exercise that I do?? They are literally the size of big grapes and they are so sore. It really hurts to put on shoes.
Anyone have this??
See, I don't mind not eating corn or banana's or wheat..... I get my cheese fix from Goat cheeses. But the sugar... there's just nothing like a good decadent piece of cheesecake or a hunk of velvety milk chocolate. And the wine... it seems that what they say is true, it's full of sugar. Perhaps I should learn to drink vodka soda's for a treat? I like my unsweetened chocolate milk with stevia but it just doesn't fill that "treat" void.
I went a solid 6 months being super strict and not cheating. For the most part, I felt terrific. Then all of a sudden I really seemed to get off track. Anyway- I feel remotivated and strong. In fact, I'm afraid all these flares have caused some permanent damage to my feet.
To all my fellow RA sufferers.... do you have large ugly balls of inflammation on your heels, well more above your heels? This is new for me and I'm trying to figure out if it's RA related or perhaps injury from all the exercise that I do?? They are literally the size of big grapes and they are so sore. It really hurts to put on shoes.
Anyone have this??
Friday, April 8, 2011
Quick Update
I am so much better. Since Sunday I have been super careful and back to my safe foods. I can't believe how much pain I was in. That'll teach me!!
It's funny because I am reminded of how much fatigue comes into play with RA. I always used to think my only symptom was stiffness and pain in my hands and feet. When my rheumatologist would ask about fatigue I would always shake my head no, I'm good. But now, I feel it. Maybe its because I'm off all my drugs so I have lifted the heavy fog. I woke up today with tons of energy and the ability to make a couple of fists again!!
It's Diet people.... I tell ya :)
It's funny because I am reminded of how much fatigue comes into play with RA. I always used to think my only symptom was stiffness and pain in my hands and feet. When my rheumatologist would ask about fatigue I would always shake my head no, I'm good. But now, I feel it. Maybe its because I'm off all my drugs so I have lifted the heavy fog. I woke up today with tons of energy and the ability to make a couple of fists again!!
It's Diet people.... I tell ya :)
Wednesday, April 6, 2011
OUCH....
Yikes....I've been in bad shape for some time now. It has been accumulating over the past 2 months or so. I was doing so well that I started to get a little bold and have some "non legal" foods! Just a bit here and there.... some dark chocolate and wine...then a cookie....then more wine. Then a little grated cheese in my salad....
I was coping ok with a little bit of the returned pain and stiffness but I'm officially out of control in a bad flare at the moment. I think that when I'm good, I can tolerate the odd little treat (for me that's white wine or cheese or chocolate) but when I'm already in a bit of a flare it's a bad idea to have those foods and that's where I've gone wrong.
Since Sunday I have gone back to a super duper clean diet. No sugar whatsoever and no dairy or wheat. A typical day is something like :
Breakfast: Sunwarrior protein (clean & vegan) with water, flax seeds and blueberries
Snack: Apple
Lunch: Salad with cucumbers & avocado (no nightshades) dressing- olive oil and vinegar
Snack: Nuts
Dinner: Chicken and brocolli
I do have a lot of stress in my life at the moment with my mom being ill...I realize that this can impact my RA.
I am going to see my Naturpath doctor tomorrow so I'm hoping he can fix me up before I grab for my naproxyn & prednsione! (just kidding.... I won't)
That's it for now!!
I was coping ok with a little bit of the returned pain and stiffness but I'm officially out of control in a bad flare at the moment. I think that when I'm good, I can tolerate the odd little treat (for me that's white wine or cheese or chocolate) but when I'm already in a bit of a flare it's a bad idea to have those foods and that's where I've gone wrong.
Since Sunday I have gone back to a super duper clean diet. No sugar whatsoever and no dairy or wheat. A typical day is something like :
Breakfast: Sunwarrior protein (clean & vegan) with water, flax seeds and blueberries
Snack: Apple
Lunch: Salad with cucumbers & avocado (no nightshades) dressing- olive oil and vinegar
Snack: Nuts
Dinner: Chicken and brocolli
I do have a lot of stress in my life at the moment with my mom being ill...I realize that this can impact my RA.
I am going to see my Naturpath doctor tomorrow so I'm hoping he can fix me up before I grab for my naproxyn & prednsione! (just kidding.... I won't)
That's it for now!!
Monday, March 21, 2011
Things that make you go hmmmmmm
Well I'm getting out of my flare slowly but surely. It seems to take a good 4 days.
I had an interesting visit with a new friend yesterday. I was at Chapters perusing the Arthritis section and a nice man came by and I noticed he was doing the same. I took a peak at his hands and realized that he definititely was a sufferer of arthritis as well. I started a conversation with him and we ended up chatting for about 30 minutes.
He had some very interesting thoughts on RA after much research. I thought this would be a good forum to throw those ideas out there to see if any of you have heard about these theories and see what your experiences have been.
My friend (Louis) read that RA can stem from a root canal, resulting in a deep infection in your mouth. It sounded far off when he first mentioned it but then I got to thinking and I had a root canal when I was 17 (my first bout with RA started around that time, I think 18) then it went away for close to 10 years. But about 5 years ago(when my RA came back) I had to have that same tooth worked on again. I had damaged gums around that crown and an infection so they extracted it and now I still have a gap. Coincidence?
My younger brother has Ulcerative Colitis and RA. He's been suffering since he was about 16. He also had a root canal when he was younger due to a fall in gym. He knocked his 2 front teeth out. He has had trouble with those 2 teeth ever since.
The other interesting piece of info he gave me was on "oil pulling." I had come across this in previous research but never gave it much thought. It's kind of gross but I'm considering giving it a try. You take about a teaspoon of oil in your mouth and swish it around for 15 min. You spit it out (don't swallow it- as it becomes toxic) It draws all the toxins out through your mouth. I haven't done a lot of research on this... but likely will and post more.
Interesting eh! Things that make you go Hmmmmmm
I had an interesting visit with a new friend yesterday. I was at Chapters perusing the Arthritis section and a nice man came by and I noticed he was doing the same. I took a peak at his hands and realized that he definititely was a sufferer of arthritis as well. I started a conversation with him and we ended up chatting for about 30 minutes.
He had some very interesting thoughts on RA after much research. I thought this would be a good forum to throw those ideas out there to see if any of you have heard about these theories and see what your experiences have been.
My friend (Louis) read that RA can stem from a root canal, resulting in a deep infection in your mouth. It sounded far off when he first mentioned it but then I got to thinking and I had a root canal when I was 17 (my first bout with RA started around that time, I think 18) then it went away for close to 10 years. But about 5 years ago(when my RA came back) I had to have that same tooth worked on again. I had damaged gums around that crown and an infection so they extracted it and now I still have a gap. Coincidence?
My younger brother has Ulcerative Colitis and RA. He's been suffering since he was about 16. He also had a root canal when he was younger due to a fall in gym. He knocked his 2 front teeth out. He has had trouble with those 2 teeth ever since.
The other interesting piece of info he gave me was on "oil pulling." I had come across this in previous research but never gave it much thought. It's kind of gross but I'm considering giving it a try. You take about a teaspoon of oil in your mouth and swish it around for 15 min. You spit it out (don't swallow it- as it becomes toxic) It draws all the toxins out through your mouth. I haven't done a lot of research on this... but likely will and post more.
Interesting eh! Things that make you go Hmmmmmm
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